On the brighter side... it seems like Michael is feeling a bit better. He's still not doing much, but that's partly because his knees are still unbelievably painful from the Sleep Study Experience From Hell. (I am thinking that he should probably have x-rays, actually, although it's unlikely that there's anything big going on... we see the doctor next week, so we can find out then.) But he seems better. More alert. More himself. A little happier, although impatient as anything and easily discouraged.
One of the worst bits for him is that during all of this, he acquired a huge amount of edema... fluid gain in the abdomen and legs. He's lost so much weight in general that he has a tremendous amount of loose skin on his abdomen, and when all this started, zoom.... it all filled up with fluid. He gained about 30 lbs. in about 2 weeks (while eating almost nothing, I should add). And every doctor has looked at it and gone, hmmmmm, but no one has seemed particularly interested or bothered. But for him, this is a Huge Big Deal. I mean, think about it... overnight you get 30 lbs. just hanging off the bottom of your stomach. Makes it hard and painful to move, and if you're a guy, makes it pretty hard to pee, too, which is probably too much information. But it's this huge catch-22... you have to get rid of the fluid somehow, and that's basically how you have to do it.... but it's a little tricky. And painful and irritating to your skin.
Anyway, 10 of those surplus pounds disappeared in 2 days, and another 2 today! So this is a really good sign. Of course, I've been feeding him all sorts of herbal diuretics and so forth, which is helping, but one way or the other, just seeing that go down is lifting spirits. And his heart rate has been ok, if still a bit high.
So here's hoping that when we see the doctor next week, his iron levels are still up, and maybe he'll actually agree to try the other heart medication.... and things will keep looking up. If the edema keeps going down, he can do some lower-body exercise, which will further help it decrease... so, fingers crossed!
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3 comments:
Nina,
I don't know how I'd handle watching hy husband suffer like Michael is. You are being very strong for him, and I admire you caring for him. He's being treated like crap by the medical people, and it makes me angry. I can't imagine how it's making you. All I can say is, keep doing what you're doing. We're with you.
Pat
you are strong, woman. beyond.
who do YOU lean on?
Unfortunately, the answer is, no one really. My new year's project is to try to get some actual human beings into our life. It's hard.
But I am just determined to make this all better. A lot of it is out of my hands, but not all of it.
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